Originally Posted by
Will Morris
There is an awful lot to unpack here. First and foremost, it is readily apparent that you are likely within the subset of the population with very poor self-efficacy and you have a lot of fear-avoidant behaviors and catastrophizing with regards to your pain experience. Even the title of your post is a strong demonstration of this. Without knowing anything else, a clinician would rightfully give you a very guarded prognosis for improvement until you are able to effectively manage these maladaptive personality traits. You made a pretty profound statement (albeit pieced together from two separate parts) that you feel better with training but stopped because you thought you were going to make things worse. Until this thinking trap gets removed, you are likely to continue to spiral down into the abyss.
The next thing is there is a remarkable amount of "bro-science", "pseudo-medical jargon", and perhaps even "self-diagnosis" to where I'm actually having a hard time discerning what a medical provider told you and what you are telling yourself or just what you interpreted a medical provider said.
I think it should come as a relatively important sign for the better that an orthopaedic spine surgeon, who is able to send his children to college and pay for his mortgage by doing spine surgeries, did not offer you surgery as a definitive treatment. As a provider (a terminal spine pathology provider, at that) he apparently did not see anything in your spine that merited the risks of surgery. To me, that communicates a positive finding, but I can appreciate in others they may see this as meaning they are so far gone that nobody can help them. It is highly unlikely that you are in that latter population.
Being 35 years old, I would be shocked if you didn't have Degenerative Disc Disease. Degenerative Disc Disease is really no more complex than just a metabolic inefficiency in the intervertebral disc where the diffusion of water is not as efficient as it used to be. Other things are definitely at play, but degenerative disc disease is even falling out of diagnostic language because it communicates so poorly with patients. Perhaps DDD would be better thought of as wrinkles in the bony column of the spine.
I am in no position to recommend you take the risk of going through with a surgery that it appears a surgeon told you may not be of any benefit to you.